What’s in a name? (NL)
September 26, 2020
All children receive one or more beautiful names at birth. Some are labeled with an extra one, unexpectedly. You might have heard of Down’s Syndrome. But do you know Prader-Willi syndrome, Mosaic Trisomy 9 or CDKL5-syndrome? All names of more or less known chromosomal disorders….
And what do you know about hereditary diseases such as KCNQ2 encefalopathy, Pelizaeus Merzbacher Disease (PMD), Lissencephaly or GRIN2A-syndrome?
And what about metabolic disorders like CLN2, Adenylosuccinase deficiency or Vici Syndrome?Ever met someone with a congenital disorder named Worster-Drought, or with an auto-immune disease Opsoclonus-myoclonussyndrome (OMS) or with Hypoxic Ischemic Ecephalopathy?
I have. Every week I work with children with these kinds of diagnoses in my practice. And also with children with spastic , dyskinetic or ataxic Cerebral Palsy (CP), children with autism, ADHD or Asperger’s. Or with children who don’t receive such a fancy label, but who are sorted under ‘Undiagnosed developmental delays’.
Hearing these names, you might think that life doesn’t have a lot in store for children wearing them. Fortunately my experience is quite different. What I have come to know is that they are certainly able to grow and develop despite their unfortunate diagnoses and foreseen limitations. Sometimes with small steps, sometimes with big leaps. Because they still do have a perfect brain that I speak to through NeuroMovement….. Again another name… This gentle movement method is based on neuroplasticity: the brain can change itself!
My name is Judith. Supposedly meaning: strong woman. And I am. Though not one with big muscles, but with a good brain, a big heart and skillful hands. I believe in the children that come to my table and in their parents that are standing right behind them. Don’t let a name bog you down. NeuroMovement works!
(By the way I also work with adults with acquired brain injury (ABI), aphasia, neck hernia, hernia, ischias, frozen shoulder, whiplash, chronic fatigue syndrome (CFS/ME), Postural Orthostatic Tachycardia Syndrome (POTS), hip problems, pelvic girdle pain, scoliosis, balance issues, back- shoulder-, and neck pain, or knee issues. Can’t find your ailment here? Consider contacting me anyway, because I work with everyone with a brain.)